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I have joined the Children’s Long Term Ventilation Team in London as their WellChild Clinical Nurse Specialist following working with the team closely in my previous role as a Respiratory Specialist Nurse at King’s College Hospital. It is a pleasure to be working in such a forward thinking, supportive team and I am very excited about my new role!
Following training for my Masters in Nursing Science at The University of Nottingham, I have dedicated my nursing Career to date to Respiratory medicine, in particular specialising in children requiring Long Term ventilation either via tracheostomy or Non Invasive Ventilation. I was inspired by the dedication and determination of the families with children requiring Long Term Ventilation while working at Great Ormond Street Children’s Hospital when I first qualified, and I knew then that I wanted to continue to work in this speciality. I am passionate about improving the experience of the transition from Hospital to home of these children and their families in order to enable them to be at home as quickly and safely as possible where they can thrive and develop.
In my previous roles I have also been lucky enough to present at local, national and international conferences. I hope this will equip me with the skills to help continue to improve services and promote the needs of children requiring Long Term Ventilation and their families, ensuring that they are always at the centre of any decisions affecting their care. I am honoured to be a WellChild representative and to be able to continue to be involved in the child and families journey to home as part of the LTV Team.
Follow us at @htohome
We are delighted to announce that as of the 5th June 2017, Hospital to Home has set up a new Twitter account.
Follow us at @htohome to check out new educational courses, upcoming events and the on-going development of Hospital to Home services. The Twitter account will be monitored Monday to Friday 8am-5pm.
I am very happy to have joined the Children’s Long term ventilation team at the Royal Brompton Hospital. I qualified as a Physiotherapist in 2008 from Sheffield Hallam University. I completed my junior rotations in Lincolnshire prior to undertaking more specialist roles in Pembrokeshire, predominantly in complex discharge management, in Truro as a respiratory therapist for NIV and in paediatric LTV/CF at Kings College hospital in London.
I have always had a passion for respiratory condition management and I have been lucky enough to work in many diverse areas within this field for both adults and children with excellent support and teaching from my seniors. I have been keen to move to a more specialist role that focused on LTV within paediatrics for some time.
Having previously worked in a large MDT for discharge planning, I really felt that this position would allow me to utilise those skills again, coupled with my respiratory and ventilation training this role is an ideal fit. Being able to work within a dynamic team supporting children back into the community is greatly satisfying and an exciting opportunity.
Hospital to Home shortlisted for the HSJ Value in Healthcare Awards
The HSJ Value in Healthcare awards judging panel have cast their votes and I am delighted to tell you that the Hospital to Home Paediatric Long Term Ventilation from The Royal Brompton and Harefield Foundation Trust has been shortlisted in The use of information technology to drive value in clinical services category. The awards will be taking place on 24th May where the Hospital to Home team look forward to meeting and networking with others that have been shortlisted, good luck to all.
Welfare Support for the Network
My background includes work with Citizens Advice, Age UK and local authority income maximisation teams. In my role at Hospital to Home, I can provide information and advice in different areas, such as with regards to the patients housing or financial situation, in order to assist the discharge process when patients are clinically fit to return home but have non-clinical barriers to discharge. I can also assist with appealing welfare benefit decisions and applying for charitable assistance grants.
I will be offering tier one welfare support to all LTV clinicians nationally who are users of the Hospital to Home LTV discharge pathway.
Tier one support involves remote assistance in answering welfare enquiries, and determining the next steps the client needs to take to resolve their issue.
This may be addressed by providing the client with information they require to resolve their enquiry or issue. If they require further support to resolve their issue, I may recommend the assistance of a local agency who can assist with the next steps, such as letter writing, form-filling or acting on the clients behalf through written or oral representation.
Over the next year I aim to produce a number of information guides and sample letters which can be used by clients and professionals to assist clients to resolve their issues.”
For more information and to contact Emma please visit our Welfare Support page on the Hospital to Home website:
This event has now been completed, please check back for a blog on the report on the results.
Having been back in the team for a year I am realising one of my goals – to hold a learning and expertise-sharing event for Occupational Therapists who work with children who are ventilated via tracheostomy.
I have worked at building up a small list of Occupational Therapists across England who work with children who use long-term ventilation. We hope that the day will include a mixture of learning and networking. The forum aims to provide opportunity to share expertise and act as a starting point to establish some best practice. We will also be analysing new equipment and reviewing an online OT communication tool.
There is little evidence for the role of the Occupational Therapist with this cohort of children, yet from talking to my colleagues I know that we are all incredibly busy, providing an essential service to these patients and families, both in hospital and in planning their discharge home. We hope the event will be well attended in order to improve the quality of information available to occupational therapists and our colleagues so we can improve the service to our patients. This is the first day of its kind for OT’s working with this complex population and I very much hope more will follow.
A Dedicated Practice Educator for Children’s Long Term Ventilation
In January of this year I joined the Hospital to Home service as Practice Educator to lead the further development of the clinical education offered by the team. I have also recently started my Masters in Medical Health and Education and hope to develop my educational skills further to assist in strategic planning and delivery of the educational service.
I started my nurse training in 2000 and my nursing background is in general paediatrics. I started working at the Royal Brompton Hospital six years ago on the paediatric cardiothoracic ITU. I have since been given many opportunities for career development and professional advancement. Following my role as Senior Staff nurse I joined the Education Team as Practice Educator and Clinical Lead for the New Graduate and Rotation Programmes. In that role I developed my skills in various teaching modalities including medical simulation, as part of the SPRINT simulation faculty, an area which we hope to develop at Hospital to Home.
Management and organisation of the educational programmes delivered gave me a passion to continue within this specialist role. Sharing my knowledge and teaching within medical health care has always given me a great sense of fulfilment and achievement. I am excited by the opportunities this role will provide.
I am very excited to be joining the Long Term Ventilation Team at the Brompton. I had the pleasure of working with the team in my previous job role as a nurse on a Transitional Care Unit and feel honoured to be worthy of a spot on such a kind, caring, competent and innovative team.
Moving to the LTV team seemed a natural step from my previous job role where I looked after children who required long term ventilation and were medically well to go home but due to many reasons were not able to. Many of the children I cared for were with us for long periods of time and for some the ward was “home” as they had never been out of hospital since birth and we were the closest thing to home.
I was lucky to be part of these fantastic children and their parent’s lives watching them grow stronger and healthier and watching the family adapt to their new family life. I also saw the struggles they went through, the disappointment when going home became a longer and trickier path. I am now looking forward to being part of the team that can be the light at the end of the tunnel and help these patients along that pathway to home and hopefully iron out the bumps and turns along the way.
Long Term ventilation Clinical Nurse Specialist
I joined the Hospital to home team in November 2016. Prior to that, I was working at Guys & St Thomas Hospital trust, while still studying to complete my degree in Bio-Medical Science. At GSTT I honed my skills and realised that I had managed to make and keep many relationships with doctors and nurses, through having conversations about my passion for science or any assignment I was doing for my degree. I gained more insight into the journey a patient took from the moment the referral process started, up until they’re discharged from hospital. I was also able to shadow many surgeons in theatre or on their on-call shifts and got to see the pathway the patients followed throughout their hospital stay.
It has always been my dream to work at the Royal Brompton Trust, because it’s the biggest Heart & Lung hospital. This is because my future goal’s to use my Bio-Medical Science degree to further train and become a Clinical Perfusionist. I have gained great insight into the referral pathways, which have been created from scratch and put in place to be used by the ECMO and LTV teams in various hospitals.
As an aspiring Clinical Perfusionist, it’s a pleasure to work in a team that develops these specific pathways that I’d use in my future career. This is a multidisciplinary team whose sole agenda is patient care. It’s very satisfying to see teams in various hospitals using our pathways to provide the best patient care and I take great pride in being part of this team.