Category Archive for "News"

Hospital to Home referral process: Children’s Long Term Ventilation service

Although we are currently reviewing our web-based referral service, Royal Brompton’s Hospital to Home service for Children’s Long Term Ventilation is still operational and taking new referrals. The service provides:

  • Clinical support from nurse, paediatric LTV consultant and AHPs
  • Allocation of regional key worker for all LTV inpatients in London
  • Welfare advice service and help with grant applications
  • Occupational Therapy specialist advise for LTV discharge to both hospital and community teams
  • Data management to comply with NHSE ‘fit for discharge’ reporting
  • Staff training and development for LTV
  • Bespoke parental and carer training
  • Education events

During this transition phase please contact our clinical team directly on or call direct dial 020 7352 8121 ext 84411.

The log in portal became unavailable to new referrals on 21st Sept 2018. For patient identifiable or clinical data, please use an account and send to

NHS England requires the use of a single source of data and recommends that providers continue to use the Royal Brompton Hospital to Home service to complete contractual requirements for discharge tracking for children on long term ventilation. If you are the main contact for your organisation, you should already have received email communications on processes to submit this information. If you have not received instructions, please contact with your role, organisation and contact number.

We apologise for any inconvenience this may cause and thank you for your understanding.

For any queries about previous data that may have been held on the portal, please contact with your name, designation and NHS organisation.

Thank you.

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New FREE Webinar – How can a dedicated welfare service support families of children with complex needs?

On the 16th August at 1 pm Emma Lear will run a free webinar titled How can a dedicated welfare service support families of children with complex needs?

Emma is a Welfare Advisor. She provides information and advice on non-clinical matters, such as the housing and financial situation of patients and their families.

PLEASE NOTE: a recording of this completed webinar can be found here: Webinar Events

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New Educational Course – Barriers to discharge for Children’s Long-Term Ventilation

Hospital to Home is offering a new course on Friday October 5th at Royal Brompton Hospital, Clinical Skills & Simulation Centre.

Barriers to discharge for Children’s Long-Term Ventilation: How welfare services and occupational therapy address housing and environmental challenges will specifically focus on occupational therapy and welfare services and how they support families with children with long-term ventilation needs.

Please find all the details and how to register here: Education Events Calendar

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Upcoming Hospital to Home Clinical Courses 2018

The Clinical Course list for 2018 has been published.

Please click here to see the details.

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New Weaning Webinar – Airway Humidification and Suctioning


Airway humidification and Suctioning

29th March 2018 at 1pm

This webinar will discuss normal respiratory tract humidification and analyse the impact of a tracheostomy on humidification and effective airway clearance.

Within this we will also consider the impact of oxygen therapy, artificial humidification methods and the effects of suction.


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Occupational Therapists working in paediatric Long Term-ventilation : A Clinical Interest Group

It has been nearly 3 months since the inaugural meeting of Occupational Therapists who have a special clinical interest in long term ventilated children.  The day was hosted at Royal Brompton Hospital and topics included buggies, travelling, the Hospital to Home pathway and maintaining a network in between our meetings.

We were a small but representative group – from Newcastle to Brighton, Nottingham, Oxford and a few different London Centres – and the day was reviewed very well.  “Peer support” was the most consistent message from the feedback, with “networking”, “sharing with all LTV OTs”, “sharing ideas and “talking to other therapists” specifically identified as the most useful aspects of the day.

The day kicked off with an introduction to the Hospital to Home pathway from Alex McClements (Children’s LTV Nurse) which led neatly into the Housing Assessment form developed by the team.  The form is hosted in the Hospital to Home pathway and it was discussed further with the group – its conception, points of reference, development and trial.  Some of the Occupational Therapists present had used the pathway and the Home Assessment form previously, some had used neither, and feedback from all was most valuable and taken back to be implemented within the service; indeed one therapist commented that “the pathway presentation was so useful and relevant.”

Unfortunately some centres were not able to attend the study day so our session on travelling was a group discussion.  We shared the recommendations we usually make to families and the resources we use – the group was in agreement with recommendations suggested and I think it is fair to say that everyone took away more information about services and resources available to therapists and families following discussion.

The presentation on buggies soon became a critique of various high street and specialist buggies, as each therapist and service had experience, between us, of the most commonly requested and provided buggies.  The group noted that funding for buggies is a very challenging area as the most common charities are no longer funding high-street buggies and yet more specialised buggies often provide excessive seating needs and the families have to wait many weeks between order and delivery.

Our final discussion was about a Wiki page for Occupational Therapists working with long term ventilated children and whether this was useful for the group.  It was agreed that this was the best way to share information going forwards as it has a forum/discussion board which suited our needs for communication.  Various information sections of the page were allocated with a representative to clean-up and add relevant information.

We finished the day agreeing on a date to reconvene next year and Clare kindly agreed to host in Nottingham!  Topics going forwards were suggested as

  • Addressing the child’s developmental needs on long hospital stays
  • Research and evidence

Thank you to all that made the effort to attend and to those that sent information in their absence.  If you would like to express an interest in this professional group then please do not hesitate to contact me.

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Challenging Conversations in Health Care: Supporting Shared Decision Making in Paediatric Long Term Ventilation Course

PLEASE NOTE: Unfortunately do to limited registrations this course has been cancelled.


Tuesday 27th March 2018, 9am-5pm

Royal Brompton Hospital, CRF Education Centre, 1st Floor, Fulham Wing, Fulham Road, London, SW3 6NP

Course Summary

Have you been involved in difficult decision making with the patients you care for? How did you manage these challenging conversation? How easy were the discussion surrounding the patients care plans with families and your colleagues? We would like you to come and share your experiences with a variety of health care professionals and learn about tools and techniques that can enrich all professional practice.

This course focuses on value based practice within health care and how  the inter-professional team can work together to make collaborative decisions surrounding  patient care . This course is aimed at Doctors, Nurses  and Allied Health Professionals working in acute and community settings.


There is a charge of £150 for external candidates. May we please ask that you also provide your address in the registration form, so that we can raise invoices with our accounts payable team.

*This Course requires a minimum of 10 delegates for facilitation, if these places are not filled there will be cancellation with full refund.

Please note: Late cancellation fees and non-attendance fees will be charged to those delegates who do not give one week notice of cancellation.


For further details and to register please click here

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New Educational Course – Weaning Neonates Dependent on Respiratory Support : A Problem Solving Approach

The weaning course has now been completed, please check the website for upcoming educational events


Weaning Neonates Dependent on Respiratory Support : A Problem Solving Approach

Date and Time

Thursday 29th June 2017, 9am-5pm


Imperial Seminar Rooms 1 & 2 Royal Brompton Hospital, Sydney Street, London. SW3 6NP

Course Summary

This course will specifically focus on neonates dependent on high flow oxygen therapy, strategies for weaning and management of the patient that fails to wean. The educational programme offered will give health care professionals caring for neonatal patients the opportunity to enhance and develop their skills and knowledge in weaning these patients from non-invasive respiratory support.

To view the course brochure please click here.

To register for the course please click here to fill out the form to be returned to




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NEW! Education Webinars

Webinars – About our webinars

The Hospital to Home team at the Royal Brompton and Harefield NHS Foundation Trust is offering the opportunity for professionals to come together to debate critical issues in clinical practice. Specialist clinicians will provide quality evidence based education and lead discussions via live interactive webinars. The webinars are highly collaborative, enabling attendees to ask questions, make comments and receive regular updates and resources before, during and after the seminar.

Our webinars are aimed at all professionals who want to keep up-to-date with new thinking to improve their practice and share expertise.

Anyone is welcome to join in the webinars for an online learning experience with video, integrated audio and live text Q&A functionality.

Our expert’s will answer as many questions as possible in the allocated time. Questions are answered in the order received, if several questions are asked on the same theme, our expert may summarise them.

Remember that the webinars are public and everyone can view your comments so do not submit information that you do not want others to see.

By taking part in one of our web chats you acknowledge and agree that we will not be responsible for any claims, losses or damages (whether direct or indirect) arising out of, or relating to, the misuse of, or inappropriate reliance on, the contents or advice contained within the chats, except to the extent that such liability cannot be excluded by law.

If you are interested in signing up for webinar alerts email to be added to our mailing list.

You can find out about upcoming webinars in our Events Calendar (click here)

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CONFIRMED AGENDA – National Network Conference 28th and 29th September 2017

2nd Hospital to Home National Network Conference for Children Requiring Long Term Ventilation


‘Working collaboratively to improve healthcare service quality for children requiring long term tracheostomy ventilation’

This event has now been completed, please check back for a blog on the report on the results

Hospital to Home are delighted to announce details of their forthcoming national conference. This meeting is an interactive event aimed at co-creating knowledge and solutions to improve the quality of services for children requiring long term ventilation. Please see further information and complete a registration form to secure your place.

Please click here for the conference flyer.

Please click here for the conference agenda.

Please click here for the registration form.

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