Children’s Long Term Ventilation Pathways

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Best Practice

Social housing priority

When a family realised they would need to be rehoused in order to manage their child’s care needs they applied to their local authority’s housing register. Unfortunately they were placed in a social housing band which did not suitably reflect their housing need and the local clinical team were uncertain how to progress the situation.

The Hospital to Home service supported the family by researching the local authority’s policy and highlighting all the elements that would support the case for being placed higher in the banding criteria.  Our welfare team produced an appeal letter using quotes from the allocations policy which was sent to the council to appeal the decision.

As a result the family was given a new housing band and priority for housing.

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Disabled Facilities Grant

After applying for a Disabled Facilities Grant (DFG) the patient’s family received a response from the local authority refusing to make a decision until the patient had returned home.

The Hospital to Home service supported the family by providing guidance on the legislation and Department of Health’s guidance on DFG decision making.  We were able to provide advice on what to include in an appeal letter which could be used to persuade the local authority to make a decision whether or not to award a DFG.

This information was used in an appeal to the DFG panel which resulted in an award being made.

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Electricity supply

A family who used an electric meter rather than regular monthly payments found that their discharge was delayed because a constant flow of electricity could not be guaranteed. This constant flow of electricity is essential for patient safety to run the necessary equipment, especially the ventilator.

The Hospital to Home service worked with the family by explaining to the electricity company the medical requirements of the patient and the importance of a constant electricity supply.

Monthly billing was introduced to the property and therefore the discharge of the patient home was successful.

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New flooring

A family had found a property and was preparing the house for the discharge date; however it became apparent that the flooring in the property was unsuitable.

Rather than re-start the housing search, the Hospital to Home service supported the family obtain grants to provide new suitable flooring.  We were able to offer guidance in completing the grant application forms and provide supporting medical evidence.

The new flooring was installed and the family was able to move into that accommodation without having to re-start the housing process.

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Cost of transport

A family of a patient based in London was finding travelling on public transport difficult due to the amount of equipment they have to carry and the expense involved.

The Hospital to Home service helped the family find their local Taxi Card scheme, which is a service that provides subsidised transport in taxis and private-hire vehicles for people who have serious mobility or visual impairments. We were able to assist the family with the application and provide advice about using the card.

The family is now able to travel to necessary appointments more easily and with far greater convenience.

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